---
product_id: 16565080
title: "Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS"
price: "$125.42"
currency: USD
in_stock: true
reviews_count: 13
url: https://www.desertcart.us/products/16565080-living-life-to-the-fullest-with-ehlers-danlos-syndrome-guide
store_origin: US
region: United States of America
---

# Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS

**Price:** $125.42
**Availability:** ✅ In Stock

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- **What is this?** Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS
- **How much does it cost?** $125.42 with free shipping
- **Is it available?** Yes, in stock and ready to ship
- **Where can I buy it?** [www.desertcart.us](https://www.desertcart.us/products/16565080-living-life-to-the-fullest-with-ehlers-danlos-syndrome-guide)

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## Description

Kevin Muldowney, MsPT has been treating people with Ehlers-Danlos Syndrome since 2005. As a physical therapist, he has developed an exercise protocol to help stabilized the many joint subluxations/dislocations associated with this genetic disorder. This book is intended for the person diagnosed with EDS to both inform them about the healthcare team needed to properly treat them as well as to guide both the physical therapist and their patient with EDS through the Muldowney exercise protocol. This book will cover such topics as: how joints sublux in this population, how to find the right physical therapist, how to exercise without injury and what physical therapy techniques works best. By the end of this protocol people with EDS should be better informed about what is going on with their body and how to make it better.

Review: Comprehensive exercise program for hypermobility - This is a very helpful book for those with EDS/Hypermobility Spectrum Disorder/hypermobility. I would even say it might be helpful to those with conditions like POTS who struggle to find a good strengthening program since most of the exercises are done lying down or reclining. The balance ball exercises are challenging but the book even suggests doing them in a hallway/near a wall so you can catch yourself. The author is very clear and provides a good amount of information for both patients and physiotherapists. I personally like reading both sections, but I have a science background. The author is clear that the protocol should be done under the supervision of a therapist. I've done PT many many times. I can't really afford the cost or the time investment any longer. However, a lot of the exercises in this book are similar to ones I've done before so I feel confident to follow the protocol on my own. The difference between this protocol and my previous PT is that Muldowney sets out a very specific progression for the exercises. It does also build up to a whole body approach that will eventually set up a comprehensive home exercise program. The book itself is large, the size of a regular textbook. I lay it flat on the ground next to me while I exercise. Print is large, easy to read. The photos are okay, I can see clearly what I need to do for each exercise. They're black and white, not anything huge or spectacular, but they get the job done.
Review: An Excellent Ehlers-Danlos Syndrome Book - This book gives great information with excellent photos of the exercises you can do to strengthen your body.

## Technical Specifications

| Specification | Value |
|---------------|-------|
| Best Sellers Rank | #58,427 in Books ( See Top 100 in Books ) #5 in Genetic Health #27 in Physical Therapy (Books) #58 in Exercise Injuries & Rehabilitation |
| Customer Reviews | 4.6 out of 5 stars 558 Reviews |

## Images

![Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS - Image 1](https://m.media-amazon.com/images/I/71C868zUwMS.jpg)

## Customer Reviews

### ⭐⭐⭐⭐⭐ Comprehensive exercise program for hypermobility
*by A***Y on May 8, 2018*

This is a very helpful book for those with EDS/Hypermobility Spectrum Disorder/hypermobility. I would even say it might be helpful to those with conditions like POTS who struggle to find a good strengthening program since most of the exercises are done lying down or reclining. The balance ball exercises are challenging but the book even suggests doing them in a hallway/near a wall so you can catch yourself. The author is very clear and provides a good amount of information for both patients and physiotherapists. I personally like reading both sections, but I have a science background. The author is clear that the protocol should be done under the supervision of a therapist. I've done PT many many times. I can't really afford the cost or the time investment any longer. However, a lot of the exercises in this book are similar to ones I've done before so I feel confident to follow the protocol on my own. The difference between this protocol and my previous PT is that Muldowney sets out a very specific progression for the exercises. It does also build up to a whole body approach that will eventually set up a comprehensive home exercise program. The book itself is large, the size of a regular textbook. I lay it flat on the ground next to me while I exercise. Print is large, easy to read. The photos are okay, I can see clearly what I need to do for each exercise. They're black and white, not anything huge or spectacular, but they get the job done.

### ⭐⭐⭐⭐⭐ An Excellent Ehlers-Danlos Syndrome Book
*by D***E on March 28, 2026*

This book gives great information with excellent photos of the exercises you can do to strengthen your body.

### ⭐⭐⭐⭐⭐ An Essential for Any PT or Person with EDS or HSD
*by S***D on August 15, 2021*

My physical therapist who specializes in working with EDS patients (and who was the first person to suggest I might have EDS) recommended this to me. It’s broken down into sections based on areas of the body it focuses on and is divided into levels of difficulty, beginning with the most basic onward. It also is written in the progression you should do to get the most efficient results (so it has a section on the sacroiliac joint and core muscles that you should build up before moving on to limbs or other areas. This also decreased the chance that you will injure or dislocate something while you work through the progressions. Each section begins with a page to the physical therapist explaining things, in addition to sections to the PT under the individual exercises. It gives you clear images and written instructions on how to perform each exercise, what it does, and instructions on how you should increase your repetitions or duration safely. My favorite thing about this book is definitely that it doesn’t require you to go out and purchase any expensive equipment. For the entire book, all you need is an exercise mat, a set of 1 pound, 2 pound, and 3 pound hand weights, a yoga ball, a couple of exercise bands, a normal ball (like a school kickball or soccer ball), a pillow, and a towel. I bought all of my supplies at Five Below. The one downside to the book for me personally was that, since it’s a PT book, it doesn’t have a lot of exercises that target the fingers and hands/wrists. My fingers and wrists are big problem areas for me so that was a little disappointing but considering those are primarily OT issues, it’s understandable. The rest of the book was just so helpful that I wish Mr. Muldowney would release an OT companion book as I have yet to find any OT resources like this. This book on its own is incredibly helpful. If you want to get the maximum results possible, I would definitely suggest working on it with a PT who can make sure your form is good and make adjustments as needed for your individual needs. But for anyone who can’t afford a PT, this book is the next best thing and honestly seems like it would be better than working with a therapist who isn’t knowledgeable about EDS or HSD. It’s worth every penny.

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*Product available on Desertcart United States of America*
*Store origin: US*
*Last updated: 2026-07-11*